Watch the HDSA EL-PFDD Meeting!

2024 Celebration of Hope!

Our first ever Celebration of Hope Gala Lunch was a success! Click below to see more pictures from this great day!

2024 Team Hope Walk!

We had an amazing time at the 2024 Team Hope Walk! Click below to see more pictures!

GIVING TUESDAY 2024!

This Giving Tuesday, your generosity can make a lasting impact on the Huntington’s disease community. Whether you donate, spread the word, or volunteer your time, your support helps us continue providing vital programs and resources to families across the United States.

2024 Amaryllis

The amaryllis is a symbol of strength and determination for the HD community. Place your orders starting October 18th!

2025 Smash HD Pickleball Tournament!

HDSA Orange County will be hosting its first ever Pickleball tournament at the Felipe Recreation Center in Mission Viejo on January 25th. Registration info to come soon!

Save the Date!

HDSA OC will be hosting a night of curling in March. More info to come!

Save the Date!

We will be having our 2025 Celebration of Hope Gala Lunch in May. This semi-formal luncheon will include delicious food and drink, raffles, auctions, music, entertainment, and more. More details to come but mark your calendars now!

SAVE THE DATE!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025. This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

Save the Date!

The 2025 Team Hope Walk will be in October. More details to come but mark it on your calendar!

Congratulations Susan Reynolds!

The Orange County Chapter's social worker, Susan Reynolds, was awarded the HDSA Excellence in Care Award. This award is our opportunity to celebrate and honor a care professional who personifies the word “care” through compassion, devotion to our families affected by HD, and commitment to our cause. Susan is an amazing resource to the HD community and has a deep, long-standing expertise providing care to HD families. Congrats Susan, this award is certainly well-deserved!

HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

HDSA California Virtual Support Groups!

You are invited to participate in HDSA support group meetings! Please click the link below to register and join. Any questions please contact Susan Reynolds at sreynold@hdsa.org or 206-426-2080.

HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

HD SYMPTOMS AND TREATMENT IMPACT SURVEY

This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

2023 HDSA Annual Report

We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

THE MARKER: 2023 HDSA RESEARCH REPORT

In 2023, HDSA supported fantastic Huntington’s disease science, shared research news with the community, and amplified family voices in drug development. The latest issue of The Marker is now available!