MAY IS HD AWARENESS MONTH | #LETSTALKABOUTHD

Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families.

NOMINATIONS ARE NOW OPEN!

Nominate the extraordinary individuals, families and organizations in your community and the HDSA Chapter or Affiliate that has accomplished great things during 2024.

MEET OUR NEW PRESIDENT AND CEO AMY GRAY

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

Registration is Now Open!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025. This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

Planning and Paying for Long-Term Care

Special guest speaker Kim Selfon, Medi-Cal and In-Home Supportive Services Policy Specialist, will provide valuable information. Tues, May 6th, 6-7:30pm. Click "Learn more" to register!

2025 Celebration of Hope Luncheon - Laguna Beach

We will be having our 2025 Celebration of Hope Gala Lunch on May 18th. This semi-formal luncheon will include delicious food and drink, raffles, auctions, music, entertainment, and more. Click "Learn more" to register today!

2025 Smash HD! Pickleball Tournament!

HDSA Orange County will be hosting its first ever Pickleball tournament at the Felipe Recreation Center in Mission Viejo on May 18th. Click "learn more" to register!

Save the Date!

The 2025 Team Hope Walk will be on October 12th. More details to come but mark it on your calendar!

HDSA California Virtual Support Groups!

You are invited to participate in HDSA support group meetings! Please click the link below to register and join. Any questions please contact Susan Reynolds at sreynold@hdsa.org or 206-426-2080.

Curling for a Cure - Postponed!

Our night of curling will be postponed until later this year. Stay tuned for updates!

Bingo - Postponed!

We will be postponing our Family and Friends Bingo night until later this year. Stay tuned for updates!

Congratulations Susan Reynolds!

The Orange County Chapter's social worker, Susan Reynolds, was awarded the HDSA Excellence in Care Award. This award is our opportunity to celebrate and honor a care professional who personifies the word “care” through compassion, devotion to our families affected by HD, and commitment to our cause. Susan is an amazing resource to the HD community and has a deep, long-standing expertise providing care to HD families. Congrats Susan, this award is certainly well-deserved!

HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

Watch the HDSA EL-PFDD Meeting!

JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

2023 HDSA Annual Report

We’re thrilled to announce the release of the 2023 HDSA Annual Report, highlighting the amazing progress we've achieved as One HDSA.

THE MARKER: 2023 HDSA RESEARCH REPORT

In 2023, HDSA supported fantastic Huntington’s disease science, shared research news with the community, and amplified family voices in drug development. The latest issue of The Marker is now available!