HD SYMPTOMS AND TREATMENT IMPACT SURVEY

This first-of-its kind survey has been created by the HD community for the HD community. When you take this survey, you will be informing the FDA, NIH and medical product developers how you describe the challenges of living with HD, manage symptoms, and define the value of new treatments.

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TAKE ACTION NOW!

You can participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024.

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JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

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SAVE THE DATE!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

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Save the Date!

We will be having our first ever Celebration of Hope event at the beautiful OC Mining Company restaurant on Sunday, Sept 29th. This semi-formal luncheon will include delicious food and drink, raffles, auctions, music, photo booth, and more. More details to come but mark your calendars now!

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Save the Date!

The 2024 Team Hope Walk will be Sunday, October 20th. We'll be at a new location, the beautiful Cedar Grove Park in Tustin! More details to come but mark it on your calendar!

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Congratulations Susan Reynolds!

The Orange County Chapter's social worker, Susan Reynolds, was awarded the HDSA Excellence in Care Award. This award is our opportunity to celebrate and honor a care professional who personifies the word “care” through compassion, devotion to our families affected by HD, and commitment to our cause. Susan is an amazing resource to the HD community and has a deep, long-standing expertise providing care to HD families. Congrats Susan, this award is certainly well-deserved!

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HDSA California Virtual Support Groups!

You are invited to participate in HDSA support group meetings! Please click the link below to register and join. Any questions please contact Susan Reynolds at sreynold@hdsa.org or 206-426-2080.

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HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

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FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

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HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

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THE MARKER: 2023 HDSA RESEARCH REPORT

In 2023, HDSA supported fantastic Huntington’s disease science, shared research news with the community, and amplified family voices in drug development. The latest issue of The Marker is now available!

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HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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